Sameer CM, 28, Kasargod, Kerala
Father – 60 years old, was a farmer but now not working
Mother – 50 years old, not working
Younger brother passed away due to excess bleeding
Both sisters have a hemophilic son
No income for now
Take loan or borrow money from others for factors
Blind on the left eye due to bleeding, has gotten no treatment
Has excessive joint pain
Economy is below the poverty line
Neighbourhood thinks that he is having AIDS-like disease, so he is avoided by them
Wants a job, can do simple gardening
Vijish A, 23
Father – agriculturist, earns Rs 2000/month
Stopped studying till 5th standard and not working
Condition is very serious
Hospital is 100 km from home – transportation difficulty
Gets pain often, every 5 mins of stressed work is painful for knee joint
Priyest K, 24, Kannur, Kerala
Father - labour
Mother - housewife
B.com graduate, waiting for final year results
Good in photoshop and computer accounting
Not able to get factors regularly due to financial problems
Keerthiraj, 18
Parents work as laborers – earns Rs 2000/month
He works as a building painter for 2 years, earns Rs 1500/month , works for 8 hrs a day
Financially unstable
Santosh Shetty, 26
Working at Karkala as shop keeper, earning Rs 1500 per month
Treatment during emergency was paid by donation
Wishes to further his study
Has swelling in the leg that impairs his walking but surgery cannot be done due to his inability to afford the factors
KN. Yashodhara, 20
Father - carpenter
He stopped school at 10th standard due to severe joint pain
Has been in a vocational school which teaches tailoring
Wishes to own a sewing machine but has no money to buy one
No friends, no self-confidence in the society
Nittesh, 19
Father - farmer
Patient works in a mobile centre (but has to stop working if the body is painful)
Has to stop education, no money to pursue a higher education
Raghavendra
Father - welder, earns Rs 3000/month
Studying BA - wants to be a teacher
Needs treatment often
Rs 25000 spent per visit to hospital
Awinash P, 19
Working as driver
Completed BA
Has epistaxis often
Wants to open car sticker shop
Financially unstable to get adequate factors
Nithin, 18
Father – pan shop owner
Mother – housewife
He is doing first year BE (self sponsored)
Not able to get factors easily during emergency, has to travel to KMC hospital, Manipal
Financially unstable
Friends know about his condition but they are not educated on hemophilia
Abdullah Ramsad, 19, Kasargod, Kerala
Father – owns a jeans shop, income around Rs 3000/month
Elder brother passed away due to excessive bleeding
He is now a part time electrician and sometimes works at his father’s shop
Shamuling G. Hulakanauar, 25
Father – farmer
Accomplished BA & B.ED
A part time teacher now but wants to be a permanent teacher
Often has knee pain and can't go to work
House is too far from hospital (300 km)
Financially unstable to support his travelling expanses and factors' costs
Santhosh Kumar
Father – agriculturist
Mother – housewife
He is in his 3rd year, doing BE
Have attended hemophilia camps in Bangalore and Tamil Nadu
Well aware of his condition and is a very determined person
Manipal Hemophilia Society